A Little Girl's Life Expectancy Is 30 Due to a Rare Genetic Condition, Now Her Family's Trying to Find a Cure
popsugar Murphy Moroney
2020-02-28 21:41:03

Before Emily Kubik welcomed her daughter Elodie in July 2016, she had no idea that her little girl would be born with an incurable, genetic connective tissue disorder called epidermolysis bullosa (EB). Affecting just one in 20,000 births in the US, kids born with EB are known as Butterfly Children — because their skin is so fragile, it resembles the wings of a butterfly.

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